The Perception of Art among Patients and Staff on a Renal Dialysis Unit
1C Corrigan, 1L Peterson, 1C McVeigh, 2PJ Lavin, 2GJ Mellotte, 2C Wall, 3A Baker Kerrigan, 3L Barnes, 4D O’Neill, 5H Moss
1Trinity College Dublin School of Medicine
2Trinity Health Kidney Centre, Tallaght Hospital, Dublin 24
3National Centre for Arts and Health Tallaght Hospital, Dublin 24
4Trinity College Dublin School of Medical Gerontology
5University of Limerick
This study investigated the purpose and effectiveness of giving outpatients an opportunity to engage in art activities while receiving dialysis treatment. A mixed method study was conducted. 21 semi-structured interviews were conducted with outpatients attending the dialysis unit and 13 surveys of clinicians were completed. The principle reasons to partake in the art activity programme included: to pass time, to relieve boredom, to be creative, to try something new, distraction from concerns, to stay positive and to achieve something new. Patients who did not participate in the programme pass their time primarily by watching TV or sleeping. All staff who partook in the survey were satisfied with the programme and wanted it to continue. Our findings indicate that the creative arts programme is viewed positively by staff and patients alike, and might be useful in other hospital departments. Further in depth qualitative research would be useful to interrogate the potential effect of engagement in art on positive mental health and quality of life for patients with chronic conditions.
Patients with end stage renal disease (ESRD) commonly experience low self-esteem and lack of confidence1. They are increasingly dependent on the health care system and may be isolated from the larger community. Patients with ESRD attend hospital as out-patients, typically spending 15–18 hours in treatment each week, with 3–5 hours travel time. Although there have been significant improvements in technology and medical care, the individual receiving dialysis may experience reduced quality of life and become uncertain of the future due to their dependence on life sustained technology and the expertise of health care professionals2. The prognosis in dialysis is poor and most patients are well aware of this. They are also aware of the demands and sacrifices made by significant others who also care for them. The combined difficulties of ESRD contribute to social isolation, affect job prospects and social life and can result in negative feelings. It is necessary for all aspects of patients’ experiences with ESRD and haemodialysis to be considered if the health care providers are to ensure a positive health outcome3. The interdisciplinary field of arts and health has an international interest in how the arts can contribute to healthcare4. The arts are associated with a range of positive health impacts such as improving social networking5, increasing life expectancy6, lessening social inequality and increasing access to healthcare7, enhancing positive affect8 and aesthetically altering the health care environment9,10,11. Recent research regarding arts in hospitals indicates concern that hospitals are aesthetically neglected healthcare environment and recommends an emphasis on meeting patients’ aesthetic needs as part of their overall health care12,-15.
There is scarce literature on arts and ESRD. Some studies indicate modest positive changes in quality of life, with none clearly articulating the perceptions of staff and patients on the effectiveness of art in a dialysis unit. We therefore undertook a mixed methods study of these issues in a dialysis unit in a university teaching hospital with an active art programme. The main purpose of this study was to understand the views and perceptions of patients that engage in the arts activity, those who do not and the staff that care for them. This study arose from sixteen years of providing weekly art sessions for patients in the dialysis unit. A total of 400 hours of visual art sessions per year, for 16 years, with 20 patients participating per week, has produced a vast body of anecdotal evidence of the benefit of art sessions in our hospital.
This study was mixed method. A qualitative study involving patients on renal dialysis in Tallaght Hospital and a mixed method survey involving staff with exposure to the arts programme on the renal dialysis unit were conducted in March 2016. These methodologies were employed to help us to gain an insight into the perceptions of a variety of staff members and patients on the unit regarding the arts programme on the renal dialysis unit. The studies helped to probe the nuances related to the questions asked. The study had local ethical approval. All participants provided written informed consent and surveys were given to the staff on the unit. Patients on the renal dialysis unit who had exposure, awareness, or participated in the arts programme between March 2015 and March 2016 were included in this study. All patients interviewed had passed the 3DY cognitive test16. Staff on the renal dialysis unit who were aware of the arts programme were surveyed separately. An artist that has worked on the program since the set-up also gave an extensive interview. Recruitment was employed for both studies using convenience sampling. Interviews were conducted with the patients on renal dialysis and the data was analysed using thematic analysis method. Surveys were circulated among the staff members working in the renal dialysis unit. For the purpose of this project, patients were categorised into those participating in the arts programme and those not participating in the arts programme. Questions for the patients who participated in the interviews are presented in Table 1. Questions were based on qualitative methodology set out by Patton17. All interviews were conducted individually by one of the three research staff in a hospital setting. The staff survey was available via survey monkey and paper format at the unit desk. The questions in both the interviews and the survey aimed to evaluate the staff perception of the arts programme. Thematic analysis was used to analyse the data18.
Twenty-one patients participated in the interviews. 10 of these were participating in the art programme and 11 were not. All patients had some knowledge about the programme. 16 surveys were completed by a variety of staff members on the unit.
Patients who engage in art programme
Ten patients were interviewed who participated in the programme (4 males and 6 females). Their ages ranged from 33 to 82 years of age with a mean age of 57.5. There were many recurrent themes for why the patients chose to participate (see Table 2). The most prominent reason being “to pass time” or “relieve boredom”. Many of the patients gave multiple answers which are expressed in the data. One patient summated: “It keeps you active, something in common with everyone. It doesn’t just stop in the hospital.”
Many patients expressed that they have an inability to sleep – as is common on dialysis - so participating in art projects is a good alternative. One of the artists that work on the unit said “it gives them another focus away from the clinical”. In terms of the favoured projects, three were found; crochet, mosaic, and painting. Again some named multiple projects whereas others expressed no preference.
Patients who choose not to engage in art programme
Eleven patients were interviewed who chose not to take part in any art activity (9 males and two females between the ages of 49 and 83 with a mean age of 72). Reasons for not participating in the programme included having no interest in art, having other things they would prefer to do, having physical issues that dominated their attention and perception that art activity would be too difficult. Many patients cited poor mobility in their hands as a problem preventing them from participating in the programme. This stems from patients having bad arthritis or having had fingers amputated. If not participating in art, eight patients watch TV, six sleep and five said they read to pass the time.
Analysis of staff survey
Sixteen staff members completed the survey over the month of March 2016. Of these 11 were staff nurses, three nurse managers, one student nurse and one artist in resident. All had some degree of knowledge about the art programme.
The staff were asked to write down what they felt was the main purpose of the programme. A variety of themes arose (Table 3). The staff were asked to say how useful (from one not useful to 5 extremely useful) they found the arts programme for patients in a variety of criteria. Table 4 shows the average score for each criterion.
Staff were asked if they thought any other departments would benefit from this programme. 13 of them said yes, one said no and two were unsure. Of those that said yes, 7 of them suggested it would be very good for chemotherapy patients, one said it would be good for care of the elderly and one said it would help any long term stay patients. Staff suggested other useful activities might include music and knitting. All 16 participants said that they valued the art programme and wanted it to remain.
To our knowledge this is the first study to qualitatively analyse the perception of a unit based, artist-led art programme among renal dialysis patients. The researchers were independent of the dialysis unit and this lack of affiliation with the programme perhaps allows a more objective standpoint than most researchers in the current literature. Patients undergoing long-term renal dialysis experience a markedly impaired quality of life (QOL), increased anxiety and depression19,20. It is also important to note that art based practices have been shown to be highly beneficial to psychological and social recovery21,22. In exploring patients’ perceptions of the creative arts programme, the general consensus among those who participated was that the programme had a beneficial impact on patients’ mood, providing an interactive and rewarding avenue for self-expression, relieving boredom while increasing the sense of community spirit on the unit. Despite the small numbers represented in this study, it should be noted that the study builds on sixteen years’ experience of providing art sessions for outpatients in the dialysis unit and a large body of anecdotal evidence and positive qualitative feedback from patients and staff.
More women than men participated in the art programme, leaving an overwhelming disproportionate representation of males not participating. Age may also be a factor in taking part, with the mean age of those participating being almost 15 years less than those who chose not to. This however would need to be confirmed in a larger study. Despite that, we would recommend projects more tailored to specific genders, as some male patients might not be comfortable with activities such as crocheting. A common complaint from patients, both in the arts programme and not, were their “bad hands” – patients commonly suffer from arthritis, peripheral oedema or even amputation of digits. If accommodations were made more readily available, it would be quite beneficial to the programme. Education programmes to inform staff and patients of the role of art in healthcare is also recommended. Staff believed the art programme was important in reducing boredom, reducing social isolation and providing a positive distraction from the dialysis. They also noted that the programme helped decrease some patients’ anxiety and depression. Over 80% thought the art programme would be beneficial in other units and wards; namely chemotherapy, geriatric medicine and any long stay patients. The most telling result of all was when we asked staff if they thought the arts programme should be kept. The accord was unanimous.
The main message is positive, not only from patients’ perspectives, but also for hospital staff, both viewpoints largely focussed on better mental health, a stimulation of communication and a better healing environment23–25. The sample size was small, and the investigation limited in this study. Further research, over a longer period of time, with more participants, and a more in depth, structured analysis would yield more robust findings and a more nuanced understanding of the benefits of art in the renal dialysis unit. Overall, our findings indicate that the creative arts programme is viewed positively by staff and patients alike, and might even be useful in other departments outside the renal dialysis unit. We suggest that the creative arts programme deserves more attention, thus allowing it to develop, improve, and maybe even spread.
We would like to thank the patients and staff at the dialysis unit for participating in this study. Funding for the project is provided by the Meath Foundation and the Punchestown Kidney Research Fund.
Declaration of Interest
The authors have no conflict of interest to declare.
Dr Hilary Moss, Senior Lecturer, Music Therapy, University of Limerick.
Email: [email protected]
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